Chronic illness is a part of me but it does not define me.

I’m sick.
I’ve been sick since I was a tinier version of myself.
  • At 7 I was diagnosed with Sarcoidosis (hurray for my ethnic background).
  • At 16 I was diagnosed with Sjogren’s (Sicca Syndrome) and at 23 I was diagnosed with Rheumatoid Arthritis.
Basically…. my immune system is shit. It thinks my body and all the organs inside it are enemy numero uno and it attacks. So I attack it with suppressants like Humira. I also take that lovely little pill often refereed to as dread pred (note the oozing sarcasm) more commonly known as Prednisone. It’s also what makes me the fluffy version you all see in pictures and in person.
But chronic illness does not mean I am weak, it does not mean I’m broken. I can scene with the best of them. I can do whatever my little heart desires. What was too much yesterday might be a cake walk today. What was easy peasy today might be a brutal torturous battle tomorrow.
Chronic illness doesn’t mean I am damaged or that I am contagious. What it DOES mean is that I have certain limitations but those aren’t yours to decide…. they are mine.
So don’t come into my life like a tragic hero out to save the girl. I don’t need saving. But mostly don’t try to control every aspect of my life and don’t tell me not to live it the way that I see fit.

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